What is Fibrous Dysplasia?
Fibrous Dysplasia is a disease that causes bone thinning and growths or lesions in one or more bones, leading to bone weakness and scar formation within the bones.
If the condition of fibrous dysplasia is mild there may be few or no symptoms at all. In more severe cases symptoms include: bone pain, difficulty walking, bone deformities, fractures.
When to See a Doctor
If you -- or your child -- have any of the above symptoms you should see a doctor.
Tests to diagnose fibrous dysplasia include: a physical exam, x-rays, CT or MRI scan, bone scan, bone biopsy,
If the case of fibrous dysplasia is not symptomatic, it can be observed with periodic x-rays. Treatment wouldn’t be required if it’s not progressing. Braces may be used to prevent a fracture, but they are not effecting in preventing deformity. Bisphosphonates can be effective in relieving pain associated with fibrous dysplasia. Surgical treatment is usually necessary.
Chances of Getting
The cause of fibrous dysplasia is not known and is not hereditary. It usually occurs in childhood between the ages of 3 and 15.
If you -- or your child -- are living with fibrous dysplasia, it would be very important to find a support group to discuss challenges with and to help you know that you’re not alone.